Free Supporting Programs

The Association’s initiative was started by a group of people with rare diseases, of parents, friends and health professionals, who shared their own concerns about the huge daily needs of people with rare genetic conditions (adults and minors).

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WE NEED YOU AS A COMPANION BECAUSE THE PURPOSE IS COMMON: EFFECTIVE HELP FOR PATIENTS WITH RARE DISEASES AND THE SATISFACTION OF THE SPECIALIZED NEEDS ARISING FROM THEIR ILLNESSES.

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Νιώσε Mε, Άκουσε Mε, Κατανόησε Mε.

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Παιχνίδι: Μέσο ανάπτυξης, μάθησης και θεραπείας.

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Ομάδες Γονέων: Μετά τη διάγνωση πως προχωράμε

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Σεμινάριο

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