Free Supporting Programs

The Association’s initiative was started by a group of people with rare diseases, of parents, friends and health professionals, who shared their own concerns about the huge daily needs of people with rare genetic conditions (adults and minors).

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WE NEED YOU AS A COMPANION BECAUSE THE PURPOSE IS COMMON: EFFECTIVE HELP FOR PATIENTS WITH RARE DISEASES AND THE SATISFACTION OF THE SPECIALIZED NEEDS ARISING FROM THEIR ILLNESSES.

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Summer Camp Program – Pissouri 2020

  See below the program of our summer camp for both periods.   Organizers and volunteers will be tested for COVID 19, courtesy of NIPD Genetics.   PERIOD Α (10/07/2020 – 15/07/2020) FRIDAY – 10/07/2020 – Arrival(10.00 a.m. – 12.00 p.m.) – Swimming Pool – Family Meeting – Children Activities – Dinner: 8.00 p.m. SATURDAY […]

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Events

Unique Smiles – Unlimited Possibilities / 25th February – 6th March

Unique Smiles – Unlimited Possibilities Unlimited Possibilities Photo Exhibition   Side Event: on the occasion of the World Rare Disease Day 43rd session of the UN – Human Rights Council 25th February – 6th March 2020 Geneva UNLIMITED POSSIBILITIES photographic project aims to portray the resilience of people living with a rare disease and their potential […]

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Events

“Wear that you care” event / 29 February 2019

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Events

“Wear the you care” event / 28 February 2019

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